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Participate in Research Projects

Are you a current or former participant in a Breast Cancer Support Group? Participate in a Research Study and share your experiences in Breast Cancer Support Groups.

What is the purpose?
The purpose of this study is to better understand the long term benefits as identified by participants in breast cancer support groups. This survey will identify common reasons for attending a support group, their identified benefits, overall experiences, and the long term impact on their survivorship. Identifying these factors will allow breast cancer agencies to plan and facilitate more sustainable support groups.

You can participate in this study if you:

  • Have ever participated in a breast cancer support group
  • Are over the age of 18

This survey is being conducted by Erin Nau, LCSW and Hillary Rutter, LCSW of the Adelphi NY Statewide Breast Cancer Hotline & Support Program

This survey will be conducted online. All information will be confidential. Your participation in this study is 100% voluntary and should only take 5-10 minutes.
If you would like to participate please click here.

If you have any questions, please contact Erin Nau or Hillary Rutter

Thank you for participating in the survey. Please share this survey with others who might qualify.

Community Healthcare Survey

In order for Stony Brook Medicine to best serve the needs of the community, they would like to hear from you. This survey contains questions about challenges you may face regarding healthcare. The survey will only take about five minutes to complete. 

Your answers will provide insight on ways to improve patient care and procedures to more effectively address the needs of the community. 

If you would like to participate in this survey, please click here.

What was your experience with the financial costs of cancer treatment?
This study, conducted by researchers at the University of Louisville under the direction of Dr. Karen Kayser, is about the impact of cancer treatment on the financial well-being and quality of life of cancer survivors.

We are inviting volunteers who have been diagnosed with breast cancer or blood (Leukemia, Lymphoma, or Myeloma) cancer within the past five years to participate in this study.

This study is open to men and women 18 years and older. It involves taking a 20-30 minute online survey and it is completely confidential.

This study is supported through a Doctoral Training Grant from the American Cancer Society and has been approved through the University of Louisville
IRB: 17.0187.

By better understanding your experiences we may be able to help others navigate the financial terrain of cancer.

If interested in participating please click here to take the survey.

Study on Geriatric Assessment for Patients 70+:
Bridging the GAP to Improve Chemotherapy Toxicities
This study is being conducted to find out if a Geriatric Assessment (survey) can help improve and develop a standard approach for reducing side effects from chemotherapy in older patients with cancer.   

For more information about this study, please Click here to see the brochure.
If interested, speak with your doctor or contact Dr. Vincent Vinciguerra at
North Shore-LIJ Health System, Monter Cancer Center
450 Lakeville Road, Lake Success, NY 11042 • 516-734-8954

Research Participants Needed for Study of Early Onset Breast Cancer
A research study is being conducted at The Feinstein Institute for Medical Research, part of Northwell Health, to learn more about how genetic variants act and are influenced by other genes or environmental factors in the development of breast cancer before the age of 40 years. The researcher, Annette Lee, PhD is recruiting women with and without BRCA mutations who were diagnosed with early onset breast cancer to participate in this study.

For more information about this study, please Click here to see the brochure.
If interested, please contact the study nurse at 516-562-8377 or
Please watch this video which talks about the study and how you can participate.

Take the First Ever National Young Adult Cancer Survey!
In an unprecedented partnership, Stupid Cancer, Young Survival Coalition (YSC) and Critical Mass are teaming up for the first ever National Young Adult Cancer Survey. Please help us prioritize, in your opinion, the most pressing issues facing the young adult cancer movement today. Your insight will help us more effectively and efficiently channel our collaborative strategy.

Take the survey here:

Exciting New PET Scan Study for Breast Cancer
Patients need to be postmenopausal, have a recent diagnosis of breast cancer, have NOT yet had surgery, and to be naive to systemic therapies. The commitment is a single 8-9 hour day. A limo will drive the patient to and from the City (the Cornell PET facility on East 70th street or so) with door to door service. She will undergo 2 PET scans with radiolabelled vorozole (our aromatase inhibitor), before and after a dose of unlabelled oral letrozole (Femara).

Lunch is provided and she may bring a companion for the day. She receives $200 compensation for her time. If interested,
please call 631-632-6245. Click here to see the brochure.

A Phase I Study of the Safety and Tolerability of Single Agent MSI-1436C in Metastatic Breast Cancer Patients

Northwell Health in collaboration with Cold Spring Harbor Laboratory and DepYmed, inc. have a new clinical trial is available which involves an experimental drug that interferes with breast cancer growth. For more information, click here

Army of Women – Dr. Susan Love Research Foundation

Participate in this study to help us learn if this drup combination can prevent new brain metastases. 
This study is conducted by Alexandra Zimmer, M.D., National Cancer Institute, Bethesda, MD

WHAT IS THIS STUDY ABOUT: The purpose of this study is to investigate whether using Temodar and Kadcyla together decreases the chance of patients with HER2+ metastatic breast cancer developing new brain metastases. Approximately 18 participants wil take part in this study.

National Institutes of Health Clinical Center, Bethesda, MD

You can join the Phase I Study of T-DM1 Alone Versus T-DM1 and Metronomic Temozolomide in Secondary Prevention of HER2-Positive Breast Cancer Brain Metastases Following Stereotactic Radiosurgery if you match ALL of these MAIN categories:

  • You are a woman or man with HER2+ metastatic breast cancer
  • You have brain metastases which were treated by stereotactic radiation or surgery within the last 3-6 weeks
  • You are able to complete a brain MRI, lumbar puncture, bloodwork, and provide a pre-enrollment brain tumor sample if available.
  • You live near or are able to travel to Bethesda, MD
Please click here for more information and to learn about this study.
Follow Adelphi NY Statewide Breast Cancer Program at:          

For further information, please contact:

Breast Cancer Hotline and Support Program
p – 516.877.4320
e –

Support Hotline: 800.877.8077